Author: Kees
Company: Microsoft

MND Association Enterprise Statements of Purpose
(T)  A system to promote research into the causes, treatment, and cure of MND, (together with the needs of patients and carers), and to assemble the learning arising from that and other research into that knowledge, (which can be promoted worldwide), leading to actions to move the incidence and impact of MND on those affected towards the vision of a world free of MND, by raising funds and distributing the funds available to those best able to progress the research and learning related to all aspects of MND, while supporting those currently in need of treatment and care.
(S1) A system to ensure that the human resource capabilities available to the MNDA in association with volunteers and others as appropriate, match the requirements of all activities in both the long and the short term, through the operation of H.R. planning (and the execution of such plans) leading to acquisition and allocation of H.R. together with the utilisation of coherent programmes of training and education in order that the defined roles can be effectively undertaken, with the necessary allocation of authority for their execution, while acting upon current personnel policies, ensuring a balance between individual and organisational needs and the desire to generate and maintain an appropriate ethos and culture across the organisation.
(S2) A system to ensure that the physical resources available, including space, match the requirements of all activities, while exploiting developments in relevant technologies and related “best practice” as a means of enhancing the overall performance of the MNDA, but recognising and acting upon appropriate technical standards and current technical constraints.
(S3) A system to develop and maintain a current knowledge base to support all activities, including that learning derived from the operation of the MNDA and the external intelligence required to provide that knowledge, by acquiring, processing and making information available as needed and by providing the source for reporting and auditing as required, but acting upon the constraints arising from the defined information assurance requirements.
(L1) A system to bring together the quality of care and treatment required by individuals with MND, by utilising appropriate services available from a variety of service providers and other resources within the relevant community, in a consistent way and at a time and place convenient to the patient, irrespective of their geographical location, while, seeking to influence the nature and standards of care and treatment provision across the variety of providers through selected  mechanisms including the production of appropriate guidelines and other publications.
(L2) A system to accommodate current and anticipated Government initiatives and developments in legislation together with other external influences and initiatives in order to respond to opportunities and minimise risks in such a way that is beneficial to the MNDA and maximises the ultimate benefit to current and potential patients.
(L3) A system to maintain and develop relationships with those individuals and institutions worldwide involved in the development of knowledge relevant to MND in order to assemble the current “state of the art” and proposed directions for future research so that a coherent picture can be acquired by relevant global institutions, through discrete events and continuing exchange of information, leading to an international research capability which can progress along a consistent pathway, while recognising any constraints arising from local and international policies and legislation.
(L4) A system to obtain the finances necessary to support the realisation of the strategic framework, through the identification of potential sources of funding and seeking to maintain current sources, while ensuring that those finances required to maintain the Association are used in a cost-effective fashion, through the continual review of its operations and organisational arrangements, but recognising and acting upon the current economic climate and the levels and policy regarding the utilisation of any reserves.
(L5) A system to ensure the availability of both internal and external channels of communication of appropriate characteristics across the geographical and organisational infrastructure of MNDA and its associates so that MND-related and individual information can be interchanged as required to the satisfaction of all personnel, while acting upon the requirements of specific standards of  IA.
(P,M,C) A Stakeholder owned system to assemble development plans for the MNDA, (in the form of a Strategic Framework), which accommodates the changing economic and social environment and reacts to the geographical structure and demography of the various regions, national healthcare arrangements and standards of provision, by defining the processes, roles, structure and policies appropriate to MNDA and undertaking the execution of these plans within constraints arising from health legislation and safety requirements, the total finances available and those constraints arising from charitable status.